CDKL5 in Color
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Experienced CDKL5 Patient Engagement Advocates
channeling over 25 years of caregiving and advocacy into powerful storytelling
Ranked by Listen Notes as in the top 10% of most popular podcasts globally!
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Weaving a tapestry of vibrant community stories.
On the CDKL5 in Color podcast you'll hear co-hosts Marissa & Amanda share lessons learned along the way as parent caregivers to children living with CDKL5 Deficiency Disorder, a rare developmental and epileptic encephalopathy. You’ll also hear voices from other members of the CDKL5 community sharing their experiences and insights.
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Get in touch! CDKL5inColor@gmail.com
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